fading margins

In brief: book is the least I've been annoyed by any such book I have yet read, which is fairly impressive going, especially since the copy in the BL's collection is the first edition originally published in 2003 rather than the second edition updated in 2013; more notes possibly to follow (subject to reaching a decision about whether I want to hold out for getting my hands on a copy of the second edition before talking about it in public).

Entertainment: shortly after I finally settled myself down in my nice corner desk against a window with my back to the wall and a whole enclosed-in-glass booth between me and Any Other Readers... my watch buzzed to let me know that I'd just finished a Period Of High Stress. The high stress was, obviously, sitting quietly wedged into a corner on public transport while reading a relaxing book. I did know public transport was exhausting! I have been saying! I'm still kind of impressed at the watch Earnestly Informing Me, In Case I Didn't? Know? and mildly regretting that I'm planning to do the same-ish again tomorrow, and also also I am reassessing A Lot of my wheelchair use in light of this...

Related entertainment: how much my hypervigilance kicked up when I returned from lunch to discover that neatly leaving my notebook and reading-book in a stack on my desk had not had sufficient inhibitory effect, and a Noisy Person had decided to sit diagonally across from me, in my Space, being Noisy. The amount I relaxed when they (temporarily) fucked off is another one for the "yep I can see how not leaving the house for over a year and then staying Hyper Local has added up to me looking much more functional" files...

The thing about buying new glasses, right, is that I've been feeling avoidant about it in part because I think I was slightly migrainey the day I had the most recent test done and I was already pretty sure that my vision goes... wrong... when migrainey -- most noticeable when moving, but always... there.

Slightly more specifically: it's neither scintillating scotoma nor loss-of-whole-field-of-vision nor any of the other very classic visual auras; instead it's a sense that I'm not managing to track movement properly along the lower edge and especially the lower corners of my field of vision.

... which matches up really well, actually, with the peripheral vision deficiencies that, er, showed up during my last eye test.

I've been noticing the Weirdness on-and-off for quite some time now, and was dithering back and forth about whether it was just confirmation bias in that I was only noticing it when otherwise migrainey -- but then on Monday, while on my way to my GP surgery to pick up some paperwork, it resulted in the railings I was going past (and that I go past regularly!) causing an extremely pronounced and unmistakeable strobing effect. I am very confident that that is not something I would somehow manage to confirmation bias myself out of noticing most of the time, so, hurrah, Definitely A Migraine Symptom (for lo, on Monday I was migrainey) it is.

The thing that is mildly baffling me is that I can't actually find (admittedly on a fairly cursory search) any description of specifically peripheral vision fuckery as a migraine thing! Lots of mentions of tunnel vision, lots of mentions of classic aura, and one case study in which "peripheral vision" is used metaphorically. So, you know, let the record show, &c.

Ordered, at least, to pick up next week.

Indulgence is a writing slope off eBay with a lucky dip of writing utensils, one of which I am very cheerful about...

Jeannie Di Bon is a "Movement Therapist" who "specialis[es] in Hypermobility, Ehlers-Danlos Syndrome and Chronic Pain." In the introduction, she talks about her own experiences in a way I find very sympathetic:

I've lost count of the number of times a doctor has told me it's all down to IBS and instructed me to eat more fibre and try Pilates or yoga to relax. Dismissive in its nature and kind of ironic now, as I trained to become a Pilates teacher in 2008.

And, you know, the actual core (yes I did that) of her Integrated Movement Method is sound: she's giving advice about fostering body awareness, of when and where you're tense and when you're not, working through a pretty standard sequence of breathing exercises and gentle movements. All the exercises in this book are the kind of thing that show up pretty early on in any full-body physiotherapy programme, that have loads of progressions available (particularly within the Pilates model), and they're absolutely fine and probably useful to folk who've not been able to access care covering this kind of topic.

If it were just the exercise programme, it would be ... fine. More or less. I think a bunch of the ways she explains movements are unclear and counterintuitive, but hey, presumably they work for at least some people.

Unfortunately, there are all of the bits in between.

Chapter 4 is where they went from "okay, you're simplifying to the point of lies-to-children but you are also explaining why" to "... either you're deliberately misrepresenting things for personal gain or you're wildly incompetent", and I'm still not sure which of those it actually is. (I am trying not to think too hard about the possibility that the answer is "both".)

( Read more... )

tl;dr there is nothing you will get from the Integral Movement Method that you won't get from competently-taught or -explained Pilates except scaremongering and misdirection... and unlike IMM, you can get decent Pilates resources for free. Don't bother with this one.

I am now well over halfway through the book, and spent most of chapter four screeching to anyone who would listen about the extent to which either she is deliberately and cynically misrepresenting approaches that aren't Her Personal Programme in the interests of selling the latter, or she's just incompetent.

The actual suggested movements -- the strength-building and the stretching -- are totally reasonable, and also totally standard. It's the surrounding framing that has my eyebrows crawling into my hairline; I... tried to summarise and rapidly discovered I was launching into the full rant, and it's past bedtime, so let's start with: while there's a References section it's a whole 15 items long, and she's blithely saying "X states" or "Y says" as though the fact that something has been published in a single peer-reviewed paper means that it's unquestionably true, and of those fifteen one is a systematic review of any kind and... Several... are under the aegis of an organisation specialising in complementary medicine.

More details tomorrow, probably. With excerpts.